Addressing legal and ethical implications of genetic findings
Genetic findings come with significant benefits for societies, including in medicine and education. These benefits are made possible due to the amount of information we can now extract from an individual’s genetic data. This advancement, however, makes urgent the need for updated legal protection of individuals.
Laws in place do not provide sufficient protection for people. The need for updated laws is particularly urgent considering the permanent nature of genetic data, the large genetic data pools and the regular data breaches.
Legal regulation is also essential for benefits of genetic science to reach all people.
Working Group on LEGAL, ETHICAL AND SOCIETAL IMPLICATIONS OF GENETICS (LESIG)
was established by TAGC and InLab, Goldsmiths, University of London, and the Institute for Law and Ethics at ICRHD (International Centre for Research in Human Development), Russia.
LESIG operates in the UK and Russia.
Training and expert evidence
If you require training, or expert evidence, in matters related to genomics and law, please feel free to contact us. Our team will be able to help you.
Questions or concerns
If you have any questions or concerns regarding legal and ethical matters, including genomic data, privacy, discrimination, fairness and liability, please feel free to get in touch.
Interdisciplinary and international efforts
To address the legal protection issue, TAGC brings together efforts from scientists, media, lawyers and policy makers.
TAGC works with partners internationally, including InLab, Goldsmiths, University of London, and the Institute for Law and Ethics at the International Centre for Research on Human Development, Tomsk State University.
Key partner on LESIG work
Institute for Law & Ethics
ILE brings together Lawyers, Scientists and Policymakers to work on legal and ethical implications of genetics, including updating laws to protect individuals and ensure fair use of genetic findings.
ILE also provides professional training, consultation, reports and expert opinions in matters related to legal and ethical implications of genetics.
The Institute collaborates with international partners, including in the UK, USA, China and Canada.