Addressing legal and ethical implications of genomic findings

Genomic findings come with significant benefits for societies, including in medicine and education. These benefits are made possible due to the amount of information we can now extract from an individual’s genetic data. This advancement, however, makes urgent the need for updated legal protection of individuals.

Specific laws are required

Laws in place do not provide sufficient protection for people. The need for specific laws is particularly urgent considering the permanent nature of genetic data; the large genetic data pools; and the regular data breaches.

Legal regulation is also essential for benefits of genetic science to reach all people.

Interdisciplinary and international efforts

To address the legal protection issue, TAGC brings together efforts from scientists, media, lawyers and policy makers.

TAGC works with partners internationally, including InLab, Goldsmiths, University of London, and the Institute for Law and Ethics at the International Centre for Research on Human Development, Tomsk State University.

 

Our work includes: Training; Expert opinions on matters legal matters; Knowledge dissemination; Reviewing law & practice; Reviewing ethical guidelines; and Proposals for policy and legislative updates. Read more…

Key partner on LESIG work


 

Institute for Law & Ethics

 

ILE brings together Lawyers, Scientists and Policymakers to work on legal and ethical implications of genetics, including updating laws to protect individuals and ensure fair use of genetic findings.

ILE also provides professional training, consultation, reports and expert opinions in matters related to legal and ethical implications of genetics.

The Institute collaborates with international partners, including in the UK, USA, China and Canada.