Working Group on LEGAL, ETHICAL AND SOCIETAL IMPLICATIONS OF GENETICS (LESIG)

LESIG Working Group was established by TAGC and its members, InLab, Goldsmiths, University of London, and the Institute for Law and Ethics at Tomsk State (National Research) University, Russia.

LESIG operates in the UK and Russia.

The Working Group aims to produce specialist proposals, through multidisciplinary work and international collaborations and exchange, for regulating genetic information.

Background: Genetic findings come with huge benefits for societies. For these benefits to reach all people, updated regulation is essential. There is also significant potential for misuse of these advancements to the harm of people. For such misuses to be minimised, updated laws need to be in place as soon as possible.

LESIG 1st Session, Russia

 

It was was hosted by the ICRHD, Tomsk State University, on 26 December 2017. Read more…

LESIG 1st Session, UK

 

The first session of the Working Group in the UK was hosted by InLab, Goldsmiths, University of London in March 2018. Read more…

Current work

 

The Working Group is working in a number of areas, including genetic data protection / privacy; health insurance genetic discrimination, population-based genetic discrimination,  sentencing in the genomic era; human rights; and surveillance.