LESIG operates across the UK. The Working Group aims to produce specialist proposals, through multidisciplinary work and international collaborations and exchange, for regulating genetic information.
Genetic findings come with great benefits for societies, including in medicine, education and justice. For these benefits to reach all people, updated regulation is essential.
Genetic findings also pose significant potential for misuse, mainly due to their resourcefulness in providing predictive information on individuals’ traits, such as health, intelligence and personality. Potential misuses include discrimination in access to health care, education and employment. To minimise potential misuses, laws must be updated as soon as possible.
LIG survey for lawyers now available
LIG is an anonymous questionnaire,
developed by LESIG, providing a platform for lawyers (advocates, judges and legal academics) to contribute their knowledge and expertise to the pressing issue of regulating use of genetic findings.
LESIG Working Group in the UK has commenced work in March 2018. The Working Group is composed law academics and practitioners, specialising on a range of areas relevant to genomic science, including Data Protection, Cloud Computing, Privacy, Sentencing, Insurance, Crime, Human Rights and Minority Groups. Read more…
The Working Group is working in a number of areas, including genetic data protection/ privacy; genetic discrimination in insurance; population-based genetic discrimination; sentencing in the genomic era; human rights; children’s rights; and surveillance.
We are also conducting a study on genetic knowledge and attitudes of the justice system professionals. Read initial findings here.
In addition, we are conducting training on genetics to lawyers with an interest in the areas involved.
Collaborations and contributions
ORGANISATIONS: We welcome proposals for collaborations, including from research organisations, law organisations (e.g. law firms, chambers, law schools), policy institutions and interdisciplinary organisations.
INDIVIDUALS: If you are a lawyer, judge or geneticist with an interest in Legal and Ethical Implications of Genetics, we will be happy to hear from you.
Contact: Fatos Selita, firstname.lastname@example.org